A New Year

It has become so hard to keep up with this blog when Willow is doing so very well. But I am realizing it is just as important to share her life when she is doing great as it is to share the days when she isn't. 

Her last surgery was March 2017. That means she has been surgery free for about 1 year and 10 months! That is an amazing thing to celebrate, yet we have not. We have stopped celebrating her 'shuntaversary' not because it isn't important to recognize, but because she doesn't want to be defined by the machine in her head, or the condition she has. So we honor her in that. Quietly thinking to ourselves how we have gone another day without an issue, in fact, we have gone almost two years!! 

My goal as her mother is to once a month, update her blog on all the wonderful things she has accomplished the month prior. So here you will see the December updates. Now, of course, if there are some not so great moments, I am going to be honest and share those as well. We aim to be real here with her journey in life with hydrocephalus. 

Without further blabbering, here are December's updates in photos. 


Pinewood Derby with Scouts - she placed 3rd
Her cookie tray done
Thank you for the FREE ice cream night Spoonlickers :) 
The Birthday girl enjoying a good laugh
Our Christmas Eve Blessing turned 8 
Everyone loves Christmas jammies :)

We are so thankful for a quiet holiday
season with no trips to doctors. 
Of course, it goes without saying, that she needs crazy hair
for Church after Christmas










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