Showing posts from August, 2014

summer update

We are closing in on our trip to DC!  It is so crazy to realize that it is just under 2 weeks away!  Willow is quite excited to go 'talk to other people with shunts like me' (she says this any time she talks about us going to DC - LOL).  The other kids are also excited as well. Each year we try to raise funds to help cover this cost of our travel expenses, and well this year we didn't get a great start to that idea. But the kids have pitched in this year with their own kool-aide stand as well as loom bracelets and candies they have made.  It has been great fun to see them work so hard to help raise money.

We had a bit of a scare with Willow two weeks ago. We thought she had a seizure, but the EEG still shows 'normal results' and without catching it on video the neurologist can't confirm seizure activity.  They are calling it some sort of sleeping issue (forgot the name of it), but I was told to think restless leg syndrome but slightly worse as it affects the wh…