Posts

Showing posts from March, 2013

What a ride....

Many of you who follow our story have been wondering how Willow is doing since her last MRI scan.  She is doing exceptionally well.  She is still developmentally where she needs to be except for her speech.  Now there were things found in her MRI that I have had to process and move on from which is why an immediate update was not found.  There is a cyst on her thalamus gland, which is in the center of her brain.  Apparently this was found on one of her scans last fall, but we were not informed of this.  So when I saw it on her report this time around, I of course panicked.  Well, the doctors have assured me that currently the cyst is stable, meaning it has not grown from the last scan.  That is great news.  The eh news that goes along with this (when there is an up there is always a down), is that it is not an 'if' but a WHEN does this begin to affect her and how.  The thalamus gland apparently controls 4 of the 5 senses, so there is a great chance of her losing the use of any…

Not much new...

Hmmm, a month has gone by yet again without a word from me!! It must mean things are still going quite smoothly and not too many exciting events are taking place.... Well, it could mean that there are so many exciting events that it is just keeping me too busy to write! I would like to think it is the latter.

Willow is still doing very well with her speech, in fact she is starting to put two words together! She will tell her brother or sister that it is 'my se' (my seat) or 'no brub' (brub is brother) and I am thinking there are others but those seem to be the ones stuck in my head currently.  She did have an MRI done last week (routine 6 month check) and we go into the neurosurgeons office this week Wednesday to hear what his thoughts are on the results.  I have a copy of the scan and the report, and it seems there are some ups and downs in this last MRI, but I have resolved myself to not freaking out until I hear what her doctor wants to do or has to say.  Right now,…