National Hydrocephalus Awareness Month

Today is the day, and it has begun! National Hydrocephalus Awareness month is finally upon us. :)

There are so many great things that I will be sharing this month, such as Willow's journey with hydrocephalus - facts that you may or may not already know - links to stories about others who are fighting this cause with us - links to be able to send donations if you feel so moved to do - chances for you to help raise awareness with us - and many other things this month.  Now I know and understand that there are people out there that by day 5 will be tired of hearing about it, or seeing it, well to be honest there are days I am too.  But this is our life and for one month I am going to talk about it non stop - And I am not going to apologize for it either.

There will be many opportunities for my friends to help spread awareness as well - there is a bowling fundraiser on the 9th this month at Westgate Bowl on Alpine and today is the last day to register for the event:

The 15th is Sibling Appreciation Day with the Pediatric Hydrocephalus Foundation having a contest to recognize the siblings of those suffering with hydrocephalus.  Do you know someone who has hydro and isn't a friend to the page yet?? Show them the way!

The 22nd and 23rd you can hold a garage sale/yard sale in the name of the Pediatric Hydrocephalus Foundation and donate all funds to the cause.  Contact me and I can give you more information! :)

I am also working on finding a location for our first support group meeting that I want to do either this month or next month - you know before the craziness of holidays set in! :)

If you are interested in helping out in any way this month, please let me know.  If you have a friend or family member with hydrocephalus point them to our pages so they know they are not alone.  If nothing else, please tell at least 1 other person in your life about hydrocephalus so that the awareness can spread! :)

Thanks for all that you do in our lives. :)

Willow on Christmas Day - 1 day old & before we knew about hydrocephalus

End of Feb./Beginning of March where we had done the ultrasound and knew something was wrong. 

After the MRI when we were told she had no brain and she would have 'global delays' but we are not sure what to expect. 

After her first surgery in April 2011... The first of many surgeries to come. 


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