Where is my baby?

Willow will be 4 1/2 next month. She is still young and will always be my baby girl - but today I let her go with her friend to Skyzone.  Now this is the third outing with this friend she has taken (a walk to the park, the zoo and then today's trip).  Today I caught some flack for sending Willow to a place like Skyzone and not 'thinking this through'. First I did think it through.
I told Willow I did not think it was a wise idea; but then I started to think some more. Why was it not a wise idea? It was toddler time there, so she was not going to be around bigger children who may be more aggressive. Plus she has jumped in bounce houses and trampolines at friends houses just fine. At what point do we let her just live? I thought we were doing just that; until today. Not only did I question her trip there - but so did her dad (and boy did I catch some flack at first).  That was when I realized we weren't really allowing her to be a little girl - we were still wanting her to be in a bubble of safety.  We have good reason mind you, 12 brain surgeries is no joke.  Yet she has been surgery free for 3 years now and we should be celebrating that and allowing her to live.

When Amanda was her age, she was already in a regular preschool class with all kinds of friends hanging out at her BFF's house all the time and having sleep overs. Yup, Amanda got to sleep over at a friends house in preschool; but we are afraid to let Willow do it.  We keep coming up with excuses and Willow is slowly challenging them in her own little way.  It really is hard to let your baby girl grow up, but I think it is even a bit more of a challenge when your baby girl has a medical condition that leaves you in a gray cloud every day.

Today is the day I realized that my baby girl is growing up and I am not happy about that. :/


May 2011
Spring 2015

Comments

Post a Comment

Popular posts from this blog

Praise the Heavens!!

The end is near!  So she has been infection/bacteria clear now for 7 full days, today is day 8 (and I was told the labs came back already for today and she is clear!! LOL)  So joyous dance for that, but then Laurie, Dr. Foody's PA came in and asked how things were going, and I said fine, and of course asked when surgery will be.... She said she will try for Friday or Monday. I began to get excited!  Then a few minutes later Dr. Foody himself came in and looked at her and saw that she was not leaking, and super smiley... He then says, he is going to talk to the infectious diseases doctor and see if we can do the surgery TOMORROW!  Oh my word can this get any better?! So, the doctors round at the room and we are talking about her weight loss, her Hudini magic tricks, her smiles etc.  Her proteins are well, iron still a little low, but not worrisome.  Then they tell me she is going to be NPO at midnight, I ask why and they say surgery is scheduled for 7:30 am! Yes we are finally goi
Read more

I never thought today would have come....

Today was supposed to be a normal Tuesday.  I would work until 11 am, then come home for a quick pump & feed (what I call it when I have to pump one side while feeding Willow at the same time!!) and then off to her 4 month check up.  Well all of that went off without too much of a hitch.  Willow is now 25" long, and 13lbs 3 oz.! Her head circumference though was 46 cm.  At her 2 month check up it was only 40.4 cm. and according to my ped. the way she read the MRI report there was no actual blockage to cause any more head growth.... So what happened?? Well we are not sure, but her head grew.   So, while visiting a friend after the appointment I get a call from my pediatrician telling me to go to the ER where we will be able to get an MRI done immediately and get the attention of the neurosurgeon quicker..... So off I go in a panic (I do remember looking at the pedometers and seeing it read at 80+ mph) not smart I know but I was freaking out!! We got here around 2 pm, and then
Read more

What a day

Image
Well, it started off okay, got up in plenty of time to get myself to work. Even grabbed a coffee with Jon before leaving the hospital!  (it's the little things right?!)  Did my job quite well today, I really felt like I was back to work and things were going okay.  For those 3 hours I knew where Willow was at, but really there was nothing for me to worry about because for starters daddy was with her, and I also knew that nothing was going on today. It is another waiting day to see what happens. So I work until 11 am, and call Jon only to find out his morning with Willow was not so precious... She pulled out her IV (that they had just put in this morning seeing as the one in her foot exploded), and that no matter how Jon tried to feed her she was not a happy camper.  So I ran home really quick to find Jon had forgotten to give Jonathan his medicine, so I run to the school give him meds, grab lunch, and rush back to the hospital.  Sure enough she was one grumpy girl!  She was able
Read more