Our stay is coming to an end

A much welcomed end too!  We really are truly blessed by how much the nurses here love our little Willow and I am extremely thankful for the great care she receives to (when under Dr. Foody's care since he knows her so well).

Anyway, surgery yesterday took longer than normal but Jon and I were keeping ourselves busy with the iPad and books to read so we didn't notice too much how long it was taking.  Her neurosurgeon came out and said there were 'no known complications', so that is good.  We put her back to a 1.5 fixed rate shunt so that will be good.  The other thing he said after surgery is that we really need to get her tubes placed immediately.  And if we could do it on Saturday before discharge even better!! LOL  Yeah like that will happen, but I did call her ENT and the soonest we can get in is the 30th of this month... so two more weeks that should not be too bad I would think.

She seems to be in great spirits this morning, so it looks good in our favor to be going home today! :)  I am so very excited for this to happen and to go back to normal with our life.  But I say normal totally tongue in cheek; especially since we just have to learn to incorporate Willow's normal into our life.  We know we will be back in the hospital again some day, so we really need to just have a plan so that the next time it happens Jon and I don't feel like we are caught off guard.  I don't know what that plan will entail, but we will figure that out later.  For now, it is 9 am on Saturday and I am going to enjoy my coffee, while Willow eats her french toast and banana.  Have I mentioned how much that girl LOVES a banana?? It is amazing to see how much that little mouth can actually fit in it! LOL

Well, I hope everyone has a good weekend, and has a better start to their new year than we did.  But today is a new day, and we will enjoy it just the same! :)

Comments

Post a Comment

Popular posts from this blog

Praise the Heavens!!

The end is near!  So she has been infection/bacteria clear now for 7 full days, today is day 8 (and I was told the labs came back already for today and she is clear!! LOL)  So joyous dance for that, but then Laurie, Dr. Foody's PA came in and asked how things were going, and I said fine, and of course asked when surgery will be.... She said she will try for Friday or Monday. I began to get excited!  Then a few minutes later Dr. Foody himself came in and looked at her and saw that she was not leaking, and super smiley... He then says, he is going to talk to the infectious diseases doctor and see if we can do the surgery TOMORROW!  Oh my word can this get any better?! So, the doctors round at the room and we are talking about her weight loss, her Hudini magic tricks, her smiles etc.  Her proteins are well, iron still a little low, but not worrisome.  Then they tell me she is going to be NPO at midnight, I ask why and they say surgery is scheduled for 7:30 am! Yes we are finally goi
Read more

I never thought today would have come....

Today was supposed to be a normal Tuesday.  I would work until 11 am, then come home for a quick pump & feed (what I call it when I have to pump one side while feeding Willow at the same time!!) and then off to her 4 month check up.  Well all of that went off without too much of a hitch.  Willow is now 25" long, and 13lbs 3 oz.! Her head circumference though was 46 cm.  At her 2 month check up it was only 40.4 cm. and according to my ped. the way she read the MRI report there was no actual blockage to cause any more head growth.... So what happened?? Well we are not sure, but her head grew.   So, while visiting a friend after the appointment I get a call from my pediatrician telling me to go to the ER where we will be able to get an MRI done immediately and get the attention of the neurosurgeon quicker..... So off I go in a panic (I do remember looking at the pedometers and seeing it read at 80+ mph) not smart I know but I was freaking out!! We got here around 2 pm, and then
Read more

What a day

Image
Well, it started off okay, got up in plenty of time to get myself to work. Even grabbed a coffee with Jon before leaving the hospital!  (it's the little things right?!)  Did my job quite well today, I really felt like I was back to work and things were going okay.  For those 3 hours I knew where Willow was at, but really there was nothing for me to worry about because for starters daddy was with her, and I also knew that nothing was going on today. It is another waiting day to see what happens. So I work until 11 am, and call Jon only to find out his morning with Willow was not so precious... She pulled out her IV (that they had just put in this morning seeing as the one in her foot exploded), and that no matter how Jon tried to feed her she was not a happy camper.  So I ran home really quick to find Jon had forgotten to give Jonathan his medicine, so I run to the school give him meds, grab lunch, and rush back to the hospital.  Sure enough she was one grumpy girl!  She was able
Read more