Stuff the bus with school supplies - GVNow - - Grand Valley State University

Stuff the bus with school supplies - GVNow - - Grand Valley State University

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I never thought today would have come....

Today was supposed to be a normal Tuesday.  I would work until 11 am, then come home for a quick pump & feed (what I call it when I have to pump one side while feeding Willow at the same time!!) and then off to her 4 month check up.  Well all of that went off without too much of a hitch.  Willow is now 25" long, and 13lbs 3 oz.! Her head circumference though was 46 cm.  At her 2 month check up it was only 40.4 cm. and according to my ped. the way she read the MRI report there was no actual blockage to cause any more head growth.... So what happened?? Well we are not sure, but her head grew.   So, while visiting a friend after the appointment I get a call from my pediatrician telling me to go to the ER where we will be able to get an MRI done immediately and get the attention of the neurosurgeon quicker..... So off I go in a panic (I do remember looking at the pedometers and seeing it read at 80+ mph) not smart I know but I was f...
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The 15th Day

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So the calendar says it is Saturday, I really would not know the differences in the days except that I did decide to go to work this week to help myself out!  It felt good to get out as I had mentioned in previous posts, and I do not regret it at all.  We have been in a holding pattern all week.  They stopped the antibiotics on Wednesday afternoon and drew more CSF yesterday twice once in the morning and once again in the afternoon.... Results are as follows, it sucks!  The morning draw had her eosinophil count at 28 and by the afternoon it was up again to 36.  :(   So that is why she is receiving steroids once again.  Well, that was indeed craptastic news, but then today happened... I decided to go out and take a break knowing that Jon was not going to be able to make it to the hospital today, and so Child Life Services (a service of volunteers here at the hospital) had offered to sit with Willow and so that was why I took them up on the offer. Well...
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Praise the Heavens!!

The end is near!  So she has been infection/bacteria clear now for 7 full days, today is day 8 (and I was told the labs came back already for today and she is clear!! LOL)  So joyous dance for that, but then Laurie, Dr. Foody's PA came in and asked how things were going, and I said fine, and of course asked when surgery will be.... She said she will try for Friday or Monday. I began to get excited!  Then a few minutes later Dr. Foody himself came in and looked at her and saw that she was not leaking, and super smiley... He then says, he is going to talk to the infectious diseases doctor and see if we can do the surgery TOMORROW!  Oh my word can this get any better?! So, the doctors round at the room and we are talking about her weight loss, her Hudini magic tricks, her smiles etc.  Her proteins are well, iron still a little low, but not worrisome.  Then they tell me she is going to be NPO at midnight, I ask why and they say surgery is scheduled for 7:30 a...
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