Colton Jaymes Haus

My thoughts and prayers are with a grieving family tonight as they said their final good byes to their baby.  One year old Colton Jaymes Haus lost his battle with Hydrocephalus today.  I have not known the family for long as I have said in a previous blog, but when you share a bond of a child with a disability you become friends rather quickly.  We had many conversations on facebook together, and I was lucky enough to make it to the hospital a few times to see him.  I got the chance to see him smile, and hold his hand.  There is nothing in the world like a little baby's smile. And I have to say Colton had a great smile! 





He was very blessed to have some incredible parents as well.  They are two very strong people, who fought for Colton every day. They did not give up the first time when the doctors told them a year ago that he would not make it past the heart surgery. He did though.  He shared an incredible year with his parents and gave them many things to smile about and love.  


Here are a few pictures of his last day that he shared with his family. While it is hard to know that a little child is no longer here with his family, we all can take great solace in knowing that he is no longer in pain.  Hydrocephalus is the silent disorder that does not always show itself to be painful, but it affects so many things.  Please say a prayer or send your thoughts to this wonderfully amazing family as they make their way ahead.  Thank you to the so many of you who have kept them in your prayers and hearts already.  

Comments

Carielle said…
My heart breaks for his parents and family. But it swells with happiness knowing that during his short time on earth, he knew so much love. Many, many prayers are being said for his family.
October 20, 2011 at 9:33 PM
mikaaron said…
absolutly heartbreaking. what a beautiful little boy. my son also has hydro and i pray for a cure. thoughts and love sent to the family of this beautiful brave little boy who is now one of gods angels xxxxxx
October 21, 2011 at 6:38 AM
Post a Comment

Popular posts from this blog

Praise the Heavens!!

The end is near!  So she has been infection/bacteria clear now for 7 full days, today is day 8 (and I was told the labs came back already for today and she is clear!! LOL)  So joyous dance for that, but then Laurie, Dr. Foody's PA came in and asked how things were going, and I said fine, and of course asked when surgery will be.... She said she will try for Friday or Monday. I began to get excited!  Then a few minutes later Dr. Foody himself came in and looked at her and saw that she was not leaking, and super smiley... He then says, he is going to talk to the infectious diseases doctor and see if we can do the surgery TOMORROW!  Oh my word can this get any better?! So, the doctors round at the room and we are talking about her weight loss, her Hudini magic tricks, her smiles etc.  Her proteins are well, iron still a little low, but not worrisome.  Then they tell me she is going to be NPO at midnight, I ask why and they say surgery is scheduled for 7:30 a...
Read more

I never thought today would have come....

Today was supposed to be a normal Tuesday.  I would work until 11 am, then come home for a quick pump & feed (what I call it when I have to pump one side while feeding Willow at the same time!!) and then off to her 4 month check up.  Well all of that went off without too much of a hitch.  Willow is now 25" long, and 13lbs 3 oz.! Her head circumference though was 46 cm.  At her 2 month check up it was only 40.4 cm. and according to my ped. the way she read the MRI report there was no actual blockage to cause any more head growth.... So what happened?? Well we are not sure, but her head grew.   So, while visiting a friend after the appointment I get a call from my pediatrician telling me to go to the ER where we will be able to get an MRI done immediately and get the attention of the neurosurgeon quicker..... So off I go in a panic (I do remember looking at the pedometers and seeing it read at 80+ mph) not smart I know but I was f...
Read more

What a day

Image
Well, it started off okay, got up in plenty of time to get myself to work. Even grabbed a coffee with Jon before leaving the hospital!  (it's the little things right?!)  Did my job quite well today, I really felt like I was back to work and things were going okay.  For those 3 hours I knew where Willow was at, but really there was nothing for me to worry about because for starters daddy was with her, and I also knew that nothing was going on today. It is another waiting day to see what happens. So I work until 11 am, and call Jon only to find out his morning with Willow was not so precious... She pulled out her IV (that they had just put in this morning seeing as the one in her foot exploded), and that no matter how Jon tried to feed her she was not a happy camper.  So I ran home really quick to find Jon had forgotten to give Jonathan his medicine, so I run to the school give him meds, grab lunch, and rush back to the hospital.  Sure enough she was one grumpy ...
Read more