Another set back
There has been a lot going on in the last 4 days since I have written, and while I have wanted to share every moment of it I also needed to digest it. I am utterly exhausted in a way that I have never felt before. I long for the days and nights of when she was a newborn and you have that type of exhaustion. That type seemed so much more simple than what I feel right now. So Wednesday we were told we would be getting the new EVD (external drain) placed on Thursday at 7:30 am; I was okay with that, because that meant that the following Thursday we would have it internalized and then maybe up to a week after that, so still 2 more weeks. Wednesday afternoon sometime, they put in a central line into her little chest. It is an IV that goes into the chest near the right shoulder and then has a catheter that runs over to her heart. It allows them the ability to draw blood easier (without more pokes) as well as continue with the vancomycin (the antibiotic she is on). This antibiotic is