Willow's Wishes

Oh how Willow loves to be in school, learning, hanging out with friends, making new one's. Oh the life of a five year old kindergartener! She started the year off with a little scare in September, an overnight stay in the hospital where we learned that her ventricles have enlarged compared to what they were when she left the hospital in March. She was admitted and stayed overnight under observations, to which showed nothing. Good ol' Willow! The following Thursday, she had another MRI which showed ventricles the same size as the previous Friday scan, so we call this, 'stable with no change' because she is still functioning well with the ventricles enlarged. October she got her eyes checked where they also looked at her optic nerve and found it was showing signs of increased pressure. So her doctor suggested, strongly, that we move up her Dec. MRI and follow up with neurosurgeon. She was putting in orders for that, but nothing ever happened with that. She did get some ...

Willow has finished preschool last week, and has enjoyed every day off so far. This girl can both crack me up and drive me up a wall within five minutes. She is set to go to the doctor tomorrow to get her cast off, and she is more than excited about that. In fact, Willow has made some big plans! They involve - water, ice, lemonade, a new blog, challenges, and videos of her! I love the enthusiasm in this one that is for sure.  I know where she is going with all of that, and I really don't think she understands all that is involved in taking on such an endeavor. I will talk to her more about it, and keep you all posted if things change on Willow's Wishes. At this point, we have no big plans for summer either; which is both nice and boring at the same time. Willow could basically plan every day of your life if you would let her, and yet some days she feels like doing nothing at all and is no help in coming up with ideas for fun. We have some fun beach days, and park play dates p...

Willow's last day of preschool was yesterday.  She did a great job this year and has grown up so much this past school year. Yesterday was not only the last day of preschool for her, but also the last day of receiving any services.  She has gone through occupational therapy and 'graduated' rather quickly; physical therapy took longer, but once she was walking we only needed a few more visits after that. I think she was done and 'graduated' from physical therapy around 18 months of age, which is really when we started a lot of speech therapy at home.  I will say that after YEARS of services, saying good bye to the good ones is so hard. These special people become like a second family, and you don't ever forget there names.  We have had an incredible team of people help us get Willow to where she is now. It is so hard to wrap my head around the idea that Willow has graduated from all services and will be starting kindergarten next year with only a 504 health pla...